Founded in 2020

Reach Out

I believe in being a lifelong learner. If I learned this as a Ph.D., it was cemented for me as an F.A.P. warrior. I thus invite you to reach out with any helpful suggestions or stories.

Email: gatekeeper@fapisrare.com
Saratoga Springs, NY 12866

For further support in dealing with F.A.P., please look for the private F.A.P. forum on facebook, as well as this private F.A.P. forum, where you can find a community of over 2,000 followers who truly support one another, plus loads of questions and responses from experienced F.A.P. warriors. Also recommended: the Desmoidian private facebook group. These groups provided insight into some of the real issues that those who have survived a colectomy and crazy diagnoses can appreciate. Indeed, experience is a treasure trove!

No one has the answers regarding your own individual F.A.P. journey—no one except you and the expert doctors you trust. That said, I’d be happy to hear any concerns you may have about navigating the F.A.P Journey; I may not have any answers for you, but I will keep track of the topics raised so as to do some more research, if helpful.

With empathy,
Krishna Priya