F,A.P Journey: Battling Anxiety, Polyps, Desmoids, a Permanent Disabling Condition, and Motherly (and Mortal) Worries
F.A.P. BLOG
There is so much to know, to learn, to research, and to hope.
Temporary Ileostomy and Recovery (with a baby in tow)
Yoga post-colectomy
When we realize in very real terms that we could die, and soon, what is the remedy of the realization of mortality? The fact is that many people will not live until tomorrow or a few years from now, yet we all think we are invincible. As Sadhguru says, "Only when you are conscious about your mortality will you want to truly know the nature of this life." I have come to realize this is very true, thanks to my experience of living with F.A.P.
3-year Colectomy Anniversary
Written in April 2019, this post takes a look at the long road of recovery since the colectomy. I discuss some details of the recovery and healing processes, as well as leaving my newborn son for Sloan Kettering to undergo major surgery, and thereafter, losing my ability to be a professor in the classroom.
Digital F.A.P. Poetry
Two poems written in 2019 that pertain to the fragility of an F.A.P. patient. Also in this post is a graph of life expectancy for F.A.P. patients, with a link to its source, a publication from St. Mark’s (UK)
Dealing with Desmoids
When you have F.A.P. and have already been through so much—the diagnosis, the colectomy, the ostomy, the disabling condition, the polyps in the stomach and small intestine—it can be quite hard to receive a new diagnosis such as that of desmoid tumors. How to deal? I am still learning…
Raw: F.A.P. & mental health
When the image of your overall health and wellbeing is shattered, there is little recourse to feelings of automatic security that people of normal health have. This is an exploration of feelings of anxiety and fear, as well as hope and gratitude.
Miracles and diagnoses happen
2017: At this time in my F.A.P. journey, I was dealing with the emotions that came with my one-year anniversary. I was marking one year since my colectomy at Sloan Kettering and looking back at my life since the major operation—a baptism by fire into major cancer centers, the world of doctors, and correct/incorrect prognoses. Ever strong and resourceful, I was also deeply coming to terms with the disabling condition, the stomach polyp worries, and motherly sadness, fears, and hopes.
Featured post of
F.A.P. Journey
A Blog about Battling Anxiety, Precancerous Polyps, Desmoid Tumors, a Permanent Disabling Condition, Motherly Worries, and the General Unknown
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