For those who live with Familial Adenomatous Polyposis (F.A.P.):

Gaining knowledge, sharing experiences, practicing self-care: in our best mindset, we know these are life-giving activities when living with F.A.P. This genetic disease is a tough battle, all the more so because of how rare, life-changing, and deadly it can be. Early diagnosis is crucial. So too are expert surgical and oncological care. I hope to gather hope, research, and stories together in order to share what F.A.P. is like from a patient’s perspective. From total colectomy to ostomy, from stomach polyps to desmoid tumors, from a disabling condition to motherly anxiety, I share my own F.A.P. journey with you—with light-hearted humor when possible!

On this website, you will find research articles, personal stories, and useful workbooks like “How to live with an ostomy” (to come!). The site is designed to emphasize LIFE in survivorship, and to offer empathy to anyone who lives with F.A.P. or who cares for someone with this disease. Perhaps one of the most practical messages here is to encourage patients to get a second opinion when needed. This is important so that less bodies are permanently messed up, and unnecessarily so. Too often, doctors are unfamiliar with F.A.P. and not skilled in how—or when—to operate. I wish you the means to find excellent surgeons and providers. These are just some of the issues discussed here, and I welcome you to get in touch with any questions or helpful suggestions.

Thank you for spreading your wings with me on this medical journey.
With empathy,
Krishna Priya